June 30, 2022

  • Concerned about me

    I contacted our probate atty as I thought I needed a guardian for Wil if I died. Boy am I embarrassed. I would of been better off re-reading his legal papers because Wil's durable power of attorney I knew named me but didn't realize it allows for whoever his 'agent' is if I die.  sigh..

    I'm trying so hard to be sure no stone is unturned and my mind has just gone off track. I'm having more difficult days with him and didn't even think about it after. I have kept a journal on the computer so I could print out anything for his doctor but until I read over it last night I didn't realize how many times he has gotten mad. Seems sundowner times. My friend said he is not being 'childish' as I said it is the dementia. He just doesn't realize it and she is afraid he may strike out at me. That never occurred to me as he has been a gentle soul.

    As I re-read I realized I have been in the mode victims of domestic violence, I have blamed myself when he got mad, I sometimes didn't know why he got mad and often I blamed myself as the trigger. Which I have been at times, you just don't argue. When he hits denial I may as well not say "well we are the only two here and I didn't put that in your drawer". Reference my french fries the other day that he took off the kitchen stove and put it in his desk drawer.  Last week I found the chicken he didn't finish wrapped in plastic and paper towels in the bottom drawer of the desk. Wouldn't have found it if I wasn't looking for my military ID.

    Now that ID is another story. I went to take him for a hair cut and found it gone. I was able to get on base as I had his. I stewed and looked for 2 days thinking he had picked it up as he does. So yesterday my friend Millie and husband came by to look too. Knowles explained the form I was going to have to fill out for a replacement as well. This was really stressing me.

    As they prepared to leave Millie opened the coat closet to look in pockets. She found it! My light jacket, and had probably been there since his last hair cut as it hasn't been cold enough for a jacket.

    Knowles also found my social security card in my wallet I had just gone over. It was stuck to the back of another card. I took it out and put it back in the glass barrel it had been in for years. I figure if anyone stole my wallet I'd have a heck of a time replacing it.  I have Wil's back here with his drivers license and house keys and car keys I took from him a long time ago. Won't put it in the glass barrel as he might get in that. I have to hide even groceries. Often he can't remember he just ate.

    You see why I'm concerned about me? Aging doesn't help memory. Add to that the days I am in pain. I do have someone right now to do my floors a couple times a month. Yet the new kitchen floor drives me nuts and I try to sweep and use the Swiffer mop on it and bathroom in between.

    The VA has Wil on Respite care twice a month so I can make my doctor appointments and they also have him weekly for shave and shower assistance. I still haven't driven to a care center they told me about since the one up the street is not satisfactory.  But I seldom go out as I order groceries.

    The cowbells on the door did not work so I found someone to install a battery operated alarm I can turn off and on and I leave it off when I'm around the living room etc. I set it in the late afternoon usually.

    I still color to relax and come back here to the computer.

Comments (16)

  • @BLB: Thanks, Bonnie for your visit and comment . Perhaps you could post a new entry ? :)
    Love
    Michel

  • @BLB:So sorry, Bonnie.

  • @fauquet: There are opportunities for 'video' chat but I have not the capabilities. Carissa used her lap top one time for Wil to talk to a doctor. Now no laptop or daughter.

  • @BLB: I thought it was like in France : the docteur receives you at his "office " or he comes to your house if you cannot move ! Diference between countries .

  • @fauquet: call him for what? you get a menu you leave a message type thing and you may or may not get a call back.

  • @BLB: You cannot call him before ?
    if impossible, be patient . As the saying says :" wait and see " !

  • @fauquet: we don't see him until next month.

  • It is not easy for you, Bonnie
    What your doctor says about will and you ?
    Love
    Michel

  • CC it seems many people don't realize not all forms of dementia are the same. Including even nurses.

  • I see my own future so clearly in your posts, Bonnie - just a little behind you. Our granddaughter took me aside a few weeks ago to make sure that my own husband was not yet getting abusive.

    You give me courage. Thank you!

  • @fauquet: I have church friends but not readily available. They drive me for appt.s I can't drive. He had a caregiver come in every Friday to help him with shower and shave. The Respite care people can only come 2 times a month.

    I can't even get my neighbors to run my car to the car wash now. They say they will but I'm lucky if they show up. So now I have to find one you just drive through.

    Juan next door will help if I call on him when he isn't working. and I can get someone to drag the trash and recycle bins when I need them.

  • Sue he is pretty good all during the day and he goes to bed all night so I don't feel he needs a facility at this time. One cannot reserve a place for future use as there may be none available there when needed and that would be money lost.

  • Hi Bonnie, My mom had dementia and I know what you are going through with that sundowners time. We were able to keep mom at home as my sister cared for her. If possible, I encourage you to check out possible memory care facilities for Wil so you know everything has been taken care of for him. You would still be able to visit many hours with him every day to be sure he was being cared for properly.

  • You are very worried Bonnie for Will and for you . Cannot someone help you to organize your future ? Are You totally alone in your area ?: friends, church, law man? If not : any family.
    It looks you live worse and worse the present time . I send to you my friendly thoughts and all of my support.
    Love
    Michel

  • Thanks Rosemary. He is confused this morning, hope Evelyn gets here for his shower/shave. He didn't get his nighttime pills last night as he swore he had taken them. So now I can't lay them on the counter by the water.

  • What a lot you have to deal with Bonnie.I know how easy it is to forget where you put something and when you have so much to take care of it must be doubly difficult. You are doing the best you can every day to keep everything going as best you can for Wil. Take care of yourself too.

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